SJS Kids Support

Lighting the way to hope!

What is SJS?

SJS stands for Stevens Johnson Syndrome. SJS is an allergic reaction to medicine. 


Like a knight in shining armor, our immune system stands guard to protect us against infections and viruses. It helps fight off any invaders that might make us sick. When a person has Stevens Johnson Syndrome their immune system for some reason makes a mistake and turns on itself like a fire breathing dragon causing blisters like a burn.  Our immune system is unable to stop this reaction.


SJS patients feel very sick and they stay in the hospital until they are well enough to go back home. They are wrapped in bandages like a mummy and given special formula in a feeding tube. Sometimes they need help breathing so they have to use a machine to help them breathe better

Educate before you Medicate!

What are the signs of SJS?

  • Rash, blisters, or red splotches on skin
  • Long lasting fever
  • Blisters in mouth, eyes, ears, and nose
  • Swelling of eyelids
  • red eyes
  • feeling like you have the Flu
  • being on a new medicine

Side Effects

  • Alopecia- loss of hair
  • Asthma- trouble breathing
  • Blindness- unable to see anything but        light and color
  • Cough that never goes away
  • Photophobia- when light hurts person        eyes
  • Dry eyes
  • tearing because of dry eyes
  • Blurry vision
  • Hearing loss